Managing and sharing research data: consent, confidentiality and disclosure

author: Veerle Van den Eynden, UK Data Archive, University of Essex
published: Jan. 30, 2015,   recorded: January 2015,   views: 1403


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When individuals are a subject of research it is important to be familiar with legal and ethical obligations related to personal information. Special attention should be paid to the consent for participation in a study, obtained from study participants. The anonymization procedure and different access regimes, which should be determined when data are offered in open access, were also presented.

Kadar v raziskavi preučujemo posameznike, je potrebno poznati pravne in etične obveznosti, vezane na osebne podatke. Posebna pozornost je namenjena privolitvi k sodelovanju v raziskavi, ki jo izkaže udeleženec raziskave. Predstavljen je tudi postopek anonimizacije ter različni režimi dostopa, ki jih je smiselno določiti, kadar podatke dajemo v odprti dostop.

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